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Collecting REaL Data

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Resources for Collecting REaL (Race, Ethnicity, and Language) Data

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[av_heading heading=’Resources and Toolkits’ tag=’h3′ link=” link_target=” style=’blockquote modern-quote’ size=” subheading_active=” subheading_size=’15’ margin=” padding=’10’ icon_padding=’10’ color=’custom-color-heading’ custom_font=’#ffffff’ icon_color=” show_icon=” icon=’ue800′ font=” icon_size=” custom_class=” id=” admin_preview_bg=” av-desktop-hide=” av-medium-hide=” av-small-hide=” av-mini-hide=” av-medium-font-size-title=” av-small-font-size-title=” av-mini-font-size-title=” av-medium-font-size=” av-small-font-size=” av-mini-font-size=” av-medium-font-size-1=” av-small-font-size-1=” av-mini-font-size-1=” av_uid=’av-4294z0v’][/av_heading]

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[av_iconlist_item title=’CMS inventory of resources for standardized demographic and language data collection’ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,https://www.cms.gov/about-cms/agency-information/omh/downloads/data-collection-resources.pdf’ linktarget=’_blank’ linkelement=” av_uid=’av-1gvnljj’]

  • Author: Centers for Medicare and Medicaid services (CMS)
  • Description: Compilation of reports, articles, guides, toolkits, training tools and webinars on race, ethnicity, and language (REaL) and disability data collection

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[av_iconlist_item title=’Agency for healthcare research and quality – race and ethnicity data improvement toolkit ‘ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,https://www.hcup-us.ahrq.gov/datainnovations/raceethnicitytoolkit/case_for_re.jsp’ linktarget=’_blank’ linkelement=” av_uid=’av-zq2nqn’]

  • Author: Agency for healthcare research and quality (AHRQ)
  • Description: Race and ethnicity data improvement toolkit provides practical tools and guidance to organizations interested in improving collection of hospital race, ethnicity, and primary language data. Includes approaches through education and training of hospital staff, data linkages and data validation, challenges to organizational and staff buy-in

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[av_iconlist_item title=’Addressing healthcare disparities through race, ethnicity, and language (REaL) data’ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,https://www.aha.org/system/files/media/file/2020/06/ifdhe_real_data_resource.pdf’ linktarget=’_blank’ linkelement=” av_uid=’av-3ge8crz’]

  • Author: American Hospital Association (AHA)
  • Description: Informational guide on importance of collecting REaL data with appendix of relevant resources for data collection, stratification, and utilization

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[av_iconlist_item title=’AHA disparities toolkit’ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,https://ifdhe.aha.org/hretdisparities/toolkit’ linktarget=’_blank’ linkelement=” av_uid=’av-2vbwjkf’]

  • Author: American Hospital Association (AHA) institute for diversity and health equity (IFDHE)
  • Description: Web-based tool that provides information and resources for systematically collecting race, ethnicity, and primary language data

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[av_iconlist_item title=’Reducing healthcare disparities: collection and use of race, ethnicity, and language data’ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,http://www.hpoe.org/Reports-HPOE/Equity_Care_Report_August2013.PDF’ linktarget=’_blank’ linkelement=” av_uid=’av-2f3q0sv’]

  • Author: Hospitals in pursuit of excellence (HPOE)
  • Description: Four step approach on obtaining accurate and usable REaL data and discussion on how hospitals and care systems can use REaL data to achieve clinical, operational, financial, and population health benefits

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[av_iconlist_item title=’Improving quality and achieving equity: a guide for hospital leaders’ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,https://mghdisparitiessolutions.files.wordpress.com/2015/12/improving-quality-safety-guide-hospital-leaders.pdf’ linktarget=’_blank’ linkelement=” av_uid=’av-26xyqxb’]

  • Author: The Disparities Solution Center at Massachusetts General Hospital
  • Description: Presents evidence for racial disparities and rationales for addressing them, provides guidance on how to develop an action portfolio to improve quality, address disparities and achieve equity, and sample case studies

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[av_iconlist_item title=’New York state toolkit to reduce healthcare disparities: improving race and ethnicity data’ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,https://www.albany.edu/cphce/mrt_nys_toolkit_to_reduce_healthcare_disparities.pdf’ linktarget=’_blank’ linkelement=” av_uid=’av-1ksgm3z’]

  • Author: New York State Department of Health
  • Description: Toolkit includes sample tools, forms, and training materials, resources for implementation, FAQs, patient/consumer materials, resources for hospital leaders, quality improvements resources

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[av_iconlist_item title=’Exploring strategies to fill gaps in Medicaid race, ethnicity, and language data’ icon=’ue803′ font=’fontello’ heading_tag=” heading_class=” link=’manually,https://www.shvs.org/exploring-strategies-to-fill-gaps-in-medicaid-race-ethnicity-and-language-data’ linktarget=’_blank’ linkelement=” av_uid=’av-1c4nwlr’]

  • Author: State health and value strategies supported by the Robert Wood Johnson Foundation
  • Description: Shorter online resource that briefly discusses background and current standards for collecting race and ethnicity data, and strategies for improving and revising collection standards

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[av_iconlist_item title=’Improving the collection of race, ethnicity, and language data to reduce healthcare disparities: a case study from an academic medical center’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5075235/’ linktarget=’_blank’ linkelement=” av_uid=’av-272l1r’][/av_iconlist_item]
[av_iconlist_item title=’Assessing race and ethnicity data quality across cancer registries and EMRs in two hospitals’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://academic.oup.com/jamia/article/23/3/627/2909000′ linktarget=’_blank’ linkelement=” av_uid=’av-ceh6gf’][/av_iconlist_item]
[av_iconlist_item title=’Responses of Massachusetts hospitals to a state mandate to collect race, ethnicity, and language data from patients: a qualitative study’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-10-352′ linktarget=’_blank’ linkelement=” av_uid=’av-bco5jj’][/av_iconlist_item]
[av_iconlist_item title=’Health Affairs Blog: Centering equity in the design and use of health information systems: partnering with communities on race, ethnicity, and language data’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://www.healthaffairs.org/do/10.1377/hblog20210514.126700/full/’ linktarget=’_blank’ linkelement=” av_uid=’av-2r3o06n’][/av_iconlist_item]
[av_iconlist_item title=’The Importance of Race and Ethnic Background in Biomedical Research and Clinical Practice’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://pubmed.ncbi.nlm.nih.gov/12646676/’ linktarget=” linkelement=” av_uid=’av-20uv8b3′][/av_iconlist_item]
[av_iconlist_item title=’Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://pubmed.ncbi.nlm.nih.gov/25032349/’ linktarget=” linkelement=” av_uid=’av-1rfv0gf’][/av_iconlist_item]
[av_iconlist_item title=’Using Patient Race, Ethnicity, and Language Data to Achieve Health Equity’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4441661/’ linktarget=” linkelement=” av_uid=’av-1cg3ff3′][/av_iconlist_item]
[av_iconlist_item title=’The Language Services Documentation Tool: Documenting How Patient Language Needs Were Met During Clinical Encounters’ icon=’ue84e’ font=’entypo-fontello’ heading_tag=” heading_class=” link=’manually,https://pubmed.ncbi.nlm.nih.gov/26111370′ linktarget=” linkelement=” av_uid=’av-kdx9bj’][/av_iconlist_item]
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